Interview Transcript
This
is a fictional interview between a speech-language pathologist and the mother of
her client.
Characters:
~Allie: a nonverbal, three-year-old
girl with autism
~Jessica
Jones: Allie's mother
~Sheila
Clark: the SLP who will be providing Allie's therapy.
This
piece provides information on the possible symptoms, characteristics, and
treatments for autism. The links to all my "creative genres"
are in this piece, so click away.
Sheila Clark: Hi, my name is Sheila
Clark. I'm a speech-language pathologist, and over the next few days, I'm
going to be assessing how Allie communicates. You're Allie's mother. . .
Ms. Jones?
Jessica Jones: Yes! It's nice to
meet you.
Clark (shuffles through papers):
Likewise. I have some good news for you -- the worst of your interrogation
is over. I understand you went through a lengthy series of interview with
your pediatrician before he diagnosed Allie with Autism Spectrum Disorder. After our program accepted Allie as a client, we continued to bombard you
with questions on your child's medical, developmental, and behavioral history.
I've reviewed any information that could possibly be beneficial in Allie's
treatment regime.
Jones: Of course, I'll answer any
questions I can.
Clark: Actually, this is going to
be a pretty informal interview. I've briefly met with Allie and I was
hoping we could discuss some of my first impressions. I also wanted to
answer any questions you might have as a concerned parent regarding my role
in treating Allie--though you're welcome to contact me anytime. I'm sure
we'll be meeting frequently to discuss Allie's progress.
(Jones nods)
Clark: She's an absolutely beautiful
little girl. She's so determined, strong-spirited.
Jones (laughs): A feisty little thing,
isn't she? I love her more than life itself, but she's a handful.
Allie knows exactly what she wants, though she doesn't seem to
understand the right way to go about getting it. . . (laughs again)
Of course, my entire family is a little high strung. Speaking of which. .
. I'm sorry, this is a little off-topic. . .
Clark: No, no, continue!
Jones: My niece,
Megan Thacker, is a budding
speech-language pathologist herself. A junior at Marshall University.
It's all she talks about. (rolls eyes). Her program requires
that she view a session of some type of speech therapy . . . and she absolutely
adores Allie. Would it be all right for her to observe a session?
She would be filling out an
observation report
*, describing what goes on in the
therapy, and analyzing how affective she believes the therapy is.
Clark: Not a problem. (pauses) Allie
is nonverbal, so I'll be working with her on very basic language skills,
probably using strategies from Applied Behavior Analysis. I have a
pamphlet that I can
give you with more specific information on autism and ABA.
I'll start teaching Allie how to use PECs, the picture exchange communication system.
It has been
effective with many of my clients because people with autism are extremely
visual. Many people with autism don't think in words.
They think in pictures.
Jones: Will teaching her PICs or PECs
or. . . whatever. . . will this keep her from speaking?
Clark: No, no, not at all! PECs
can set the stage for verbal communication. If we get the child to
understand indirect representation -- here. Let me show
you. (picks up pencil). This is a pencil. (takes
pencil and
haphazardly scribbles on post-it note. holds the post-it in one
hand, the pencil in other hand). This is a picture of a pencil. In
the PECs system, the child learns to hand me this (extends hand with the
picture) in exchange for this (extends hand with the pencil before putting down both
props) This is indirect representation. The picture is not the
object at hand (eyes pencil); it is a symbol, a representation, of the object.
Indirect representation is the foundation for speech and language.
And if Allie cannot acquire language, PECs
will give her a way to convey what she wants and what she needs.
Does she attempt to communicate with you now?
Jones: She tantrums. She'll
scream and cry when she's upset. Oh my goodness, like when the Teletubbies
come on. When they start dancing about . . . when they start socializing
with that. . . floating sun-baby thing. . . oh, she yells like there's no
tomorrow.
Clark: Is this intentional
communication? Is she crying because she's upset, or because she expects
you to do something?
Jones: I feel certain she wants me to
turn off the television in response to her crying. If the crying doesn't
get my attention, she'll kick the television set. I think she realizes
that her kicking forces me to drop whatever I'm doing and run to her aid.
Clark (nods): As a speech therapist,
I've realized how important it is to understand how a child may attempt
communicate. From these behaviors, we ". . . formulate goals
to make communication conventional. For example, [we] can teach a child to
shake his head 'no' instead of screaming and throwing" (Maurice, 1996, p.
299)
Jones: I brought my
journal with me.
All the entries are written before Allie was diagnosed with autism . . .
the last entry was written two days before. I want you to tell me what you think about
her diagnosis. I thought was born with autism.
(Clark accepts journal and skims through)
Clark: I'm not certified to diagnose autism,
but I will provide you more information regarding the disorder.
Autism is a developmental disorder, and it's not always identifiable at birth.
Symptoms should be evident within the first 36 months, and more than likely the
problem will be evident before 30 months. (Rogers, 2005) There are so many
reasons some children go a long time without being diagnosed. First of all, children with autism can lose
language, motor, and social skills. (Rogers, 2005) Other times the symptoms
aren't apparent until the child reaches an age where more is expected from him
or her. They aren't meeting linguistic milestones, they're abnormally
reclusive, etc.
Jones (nods): Allie'll take all the
shoes in the house and just line them up against the wall. She'll rearrange
shoes for hours and hours. It scares me...
Clark: This type of play behavior is a difference in children
with autism. Their play can be very restricted, and their attention can be
difficult to divert.
Jones: There are times I call "Allie!"
two or three times before she looks up!
Clark: Just know that Allie is not being
defiant. "It takes a long time. . . for children [with autism] to process,
understand, and organize information they hear..." (Janzen, 1999, p. 20)
"Sometimes this delay is as long as 30-45 seconds" (Janzen, 1999,
p.20).
"These children also have difficulty maintaining attention on verbal
information. Their attention fades in and out as it is diverted or
overwhelmed by background noises" (Janzen, 1999, p.20)
Jones: Allie's much less responsive
when any kind of noise is in the background. Even the sound of the running
dishwater seems to distract her.
Clark: It's impossible for us to understand
exactly how a child with autism perceives the world, but we do know that autism
is also a sensory disorder. Someone with autism can be hypersensitive or
hyposensitive to
sensory stimuli--whether it be tactile, visual, or auditory information.
(Janzen, 1999) People with autism process things differently than you and I do.
"They may miss what appears obvious to others and notice subtleties that others
miss" (Richard, 1997, p.11) She might not be able to discern your voice from the
sound of the dishwasher.
Jones: I just wish things didn't have
to be so hard for her.
Clark: I assure you, we'll do
everything we can to help. "The available evidence from a variety of
programs and studies suggests that early intervention leads to better outcomes"
(Corsello, 2005, p.81) And the sooner the problem is identified, the earlier
intervention can begin. Fortunately, "...the preschool years are still
considered 'early' when it comes to intervention" (Corsello, 2005, p.82).
Jones: I pray for her everyday. I pray
that she will be provided every possible opportunity to find happiness.
Clark:
There's not a cure for
autism -- but we're learning more about the disorder everyday, and discovering
new strategies for to help individuals with autism communicate with others.
Jones:
Thank you so much for taking the time to meet with me. Now (pauses)
Allie doesn't take to strangers very well --
Clark
(laughs): Hopefully we won't be strangers for very long! I'm looking
forward to working with Allie-- as well continually updating you on her
progress. I'll call you within the next week so we can schedule another meeting.
Jones:
Next week it is. (pauses) Take good care of her. She's my baby.
Clark
(nods): You have my word. I'll see you next Monday!
Jones: Bye! (exits)
* In the interview, Ms. Jones
asks if her niece can fill out an observation report on Allie. The link goes to
the observation report that her niece has already filled out. I realize
this is confusing, and I'm sorry -- we're looking into a future therapy session
with Allie and the SLP.
References:
Corsello, Christina M.
(2005). Early intervention in autism. Infants & young
children: An interdisciplinary journal of special
care practices, 18(2),
74-85. Retrieved October 2, 2005, from Academic Search
Premier database.
Janzen, J. (1999).
Autism: Facts and strategies for parents. United States :
Therapy Skill Builders.
Maurice, C. (Ed). (1996). Behavioral
intervention for young children with autism: A manual for
parents and professionals. Austin, TX : PRO-ED, Inc.
Rogers, Sally J. (2004). Developmental
regression in autism spectrum disorders.
Mental Retardation & Developmental Disabilities Research,
10(2), 139-43. Retrieved September 28, 2005, from the Academic
Search Premier database.